48. CASE: Shared Experience

You have recently started working as an RN in cardiology at the local pediatric health centre. One of the first cases you are involved with hits a little close to home. It involves a 2-year old patient named Kira who has a congenital cardiac abnormality. The clinical circumstances are similar to what you experienced with your son, Bradley, about four years ago. Bradley spent several weeks in hospital for investigations and you and your partner were faced with a difficult decision about whether to proceed with cardiac surgery. With some understandable trepidation and anxiety, you and your partner agreed to the surgery and Bradley came through it just fine. However, given the nature of the cardiac abnormality, you know how easily it could have turned out differently. You now see Kira’s parents faced with the same difficult choice. They are struggling with what decision to make and are very anxious.

  • Should you discuss your own experience with Kira’s parents?
  • If so, what might you choose to disclose?
  • What biases might you contribute to the situation – should you try to minimize their influence?
  • How will you balance your professional expertise and personal experience?

Part 2

It is about a year later and you run into Kira’s parents in the hallway outside the cafeteria. They have just come from the parents’ bereavement group and are having a tough time living without their daughter. They are organizing a charity event in their community to celebrate their daughter’s life and to generate funds for the pediatric cardiology program. Both parents express how much they would appreciate it if you came to the event and spoke at it in the capacity of one of the individuals who cared for their daughter. The event is scheduled for six weeks from now and the parents indicate that they need to know as soon as possible whether you can participate.

Should you go to this event? If so, should you be a speaker? 

Some Values and Ethics Issues to Consider

  • Compliance with policies and procedures
  • Respect for professional integrity
  • Patient-provider relationships
  • Honesty, trust and truth-telling
  • Overlapping roles and responsibilities
  • Family and community relationships
  • Professional boundaries
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